Tuesday, August 3, 2010
“Write to be understood, speak to be heard, read to grow...”
So I needed to bounce some research topics ideas off of here and I am having some trouble. Everyone wants to write goofy papers about vacations and frilly things and I LITERALLY CANNOT. I thrive on figures and facts and statistic. I LOVE meaningful topics, mostly from the medical side of things. Shoot me because I just refuse to give on this. I was told I was too serious for my age... I can't decide if it was meant as an insult or as a compliment???? Anywho I knew what I was going to do this paper on from the get go and that is living organ donation. A copy of the paper has already made an appearence on my blog so enjoy kids and help support the cause. Together we can change this!!!! The title of this bliog is mostly to support my supposed boring-ness! Rock on!
How to Pass life On
How to Pass Life On
“What does it mean to pass life on? It means that you have the potential to help save and enhance the lives of others- those who suffer from chronic illness, from debilitating disease, from the effects of traumatic events.” (Life) Can you imagine what it would be like to be able to save someone’s life just by making the conscious decision to do so? What it feels like to have such power in your hands that you could save someone’s mother or father, sister or brother, son or daughter just by saying “I will do this.” The secret here is that you CAN save someone’s life just by saying “I will do this.” It isn’t a decision to take lightly or one you can make over night but it is one worth considering. The gift of life I am talking about is living organ donation. Most people are not even aware that living organ donation is a possibility and even less is commonly known about the process, risks, benefits and the costs associated with this most selfless gift. Organ donation is important even if you only choose to donate after death, but with medical science progressing every day we now have the unique ability to become an everyday superhero. Here are facts and a basic guide to becoming a living organ donor.
When most people think of donating organs the first thing that comes to mind is death. While it is true that most organ transplants take place after someone has been legally declared brain dead, it is possible to be a living organ donor. Most people who make the decision to become a living donor donate their organs to a family member or close friend, but there are also many cases of selfless strangers donating to people that they have never even met. Roughly 6,000 transplant surgeries a year happen because of living donors! (Transplant) While this number seems great it is sadly still true that about 18 people die each day because of a lack of available organs. (Donate) Currently there are about 116,949 people on the transplant waiting list (United) and it roughly every 11 minutes another person is added to this list. (National) The decision to become a living organ donor is not one to take lightly you should be sure to consider all of your options before making this very personal decision.
The most common organ donated by a living donor is a kidney. Due to this fact, most people tend to be under the impression that the only organ a living donor can donate is a kidney, however this is not true. A living donor has the ability to donate a kidney, a portion of their liver, one of their two lungs, part of the pancreas or part of their intestines. It is important for all people considering live organ donation to understand why they can safely donate these organs. A living donor can donate one of their two kidneys because the remaining kidney will function well enough on its own to still remove waste from the body. It is possible to donate a portion or lobe of their liver because a healthy liver has the unique ability to regenerate itself or re-grow its cells almost back to its original size in a short amount of time! Donating a lung, part of one’s pancreas or a portion of their intestines is somewhat different from the liver. These organs are different because they do not have the ability to regenerate themselves; however, the donated portion and the portion remaining with the living donor are fully functional without the missing section. (US) Now that you understand what organs can be donated you should research the criteria a living donor must meet.
Many people are able to be living organ donors, with this being said of course there are ideal circumstances and ultimately the decision is made at the discretion of the transplant center you are working with. The criteria to be a living donor has some wiggle room and is not entirely concrete so don’t let these general guidelines discourage you; every case is different. In general it is recommended that living donors range in age from 18 to 60 years of age. Donors should be in good overall health and emotionally stable. You must be a compatible donor for your recipient. Donors should not have or have had diabetes, cancer, a history of high blood pressure, heart disease or kidney disease. (Donate) There will be many physicals and routine exams and tests preformed to ensure that a potential donor’s physical and emotional health are adequate. Your health and safety as a donor are important, if there is any indication that the transplant will have a negative effect on your life the doctors will not approve the surgery.
There are several types of living donation that you can consider; here we will examine the four most common types of living donation. The most common living donation occurs between blood relatives and is known as related donation; it is when a living donor gives an organ to someone who is closely related to them by blood such as a brother, sister, parent etcetera. Another type of living donation is known as Non-Related donation and occurs between people who are emotionally close to one another though not actually related by blood such as a spouse, in-law or best friend and so on. Non- Directed donation happens when the donor and recipient do not know one another at all and have never met; this is donation is made by a completely selfless donor. A more complicated type of living donation occurs between two kidney donor/recipient pairs that are already matched but not compatible with one another. In this case the recipients exchange donors so that they are then compatible and can receive their new kidneys. (Donate)
There are several tests that are involved with becoming a living donor. Transplant teams want to ensure that they are careful and thorough so that the best outcome can be expected. The first step is to make sure that the donor and recipient have a compatible blood type. Your blood types don’t have to be an exact match but there are certain blood types that are compatible and others that are not. The following chart will illustrate the blood type compatibility:
Blood Type Compatibility Chart
Recipient's Blood Type Donor's Blood Type
O O
A A or O
B B or O
AB A,B, AB or O
(Transplant) Courtesy of transplantliving.org
If the donor and recipient are deemed compatible then the next step is the extensive medical work up which includes nine main components. The first test is tissue typing. Tissue typing is when the donors blood is taken and matched using 6 codes on donor and recipients cells. This is a standard test but very rarely used as a determining factor for living donation. The second test is called Crossmatching. Crossmatching is another blood test that can tell is the recipient will adversely react to the donor organ. The test can find out if antibodies in the recipient will react adversely with the donors, if this happens the recipient will immediately reject the organ and therefore the transplant team would not want to proceed. This test is most commonly used for kidney and pancreas transplants. The third test is the Antibody screen. The antibody screen can basically be described as the same as crossmatching as it is used as a way to determine donor/ recipient compatibility based on antibodies but it is used in all transplants. In the case of a kidney transplant a urine test is preformed to make sure that the donor’s kidneys function well enough. A chest x-ray and electrocardiogram is used to make sure that the donor does not have an unknown lung or heart disease. An arteriogram is a set of tests that allows the organ that is going to be transplanted to be viewed by injecting liquid that can be seen on an x-ray into the blood vessels. A psychiatric and psychological evaluation will also be performed to make sure that the donor is making this conscious decision with a sound and healthy mind. For potential female donors a complete gynecological exam is also necessary along with a mammogram for women over the age of 32. Finally there is a final blood test usually conducted within two days of the transplant; it is another crossmatch to ensure again that the two people are entirely compatible. (Transplant)
Perhaps the biggest thing that people consider before deciding whether or not to become a living donor is the risks associated with the surgery and after care. No matter what your individual transplant team will be able to give you the best answer for this question because they know every aspect of your medical history and the circumstances surrounding the transplant so be sure to consult them for a better idea. There is a general list of risks that although rare can happen. The risks can include pain, infection, incisional hernia, pneumonia, blood clots, hemorrhaging, the potential need for a blood transfusion or even death. There are also some psychological concerns as well. Psychological concerns include anxiety, depression, distress if the organ is rejected or guilt should the recipient die. These risks are serious and real, but also rare. Your transplant team can help you better understand these risks and you should consider them when you make your decision as well.
Recovering after donating an organ sounds scary and confusing! The truth is donors only stay in the hospital an average of four to seven days after the surgery. As a general guideline it is said that donors can resume their normal, everyday activities roughly one month after surgery and even return to work at approximately six weeks post-op. After the operation you will have follow up care with the transplant team to ensure that you are doing well both physically and emotionally following the transplant and shortly thereafter you will be able to return to your primary care physician. (Transplant) It is important to know that being a living donor does not change or decrease your life expectancy! Typically living donors continue to live normal, healthy lives just as they did before the transplant. (Donate) Women who wish to become living donors should know that there are no studies to show that pregnancy after donation is abnormal at all. However, in order to give your body proper time to heal it is suggested that you wait about six months to become pregnant after your surgery. As far as future insurance coverage goes, having been a living donor is not restricted by most insurance companies. (Transplant)
“Somewhere on that list is… A man who hopes he’ll be around to walk his daughter down the aisle. A woman who wants nothing more than to grow old with her husband. A child who can’t remember a time when trips to the hospital weren’t a normal part of life.” (National) Living donation is a way to increase the number of transplants per year to help bridge the gap in the organ shortage. In 1954 the first living organ donation was performed. The patients were 23 years old and were identical twins. Ronald Herrick donated his kidney to his twin brother Richard. Although Richard Herrick died eight years later it was unrelated to the transplant and until that point both men’s lives had been normal and healthy. (Transplant) Undeniably since 1954 the medical advances are astonishing and only continue to get better. The survival rates for transplant recipients only continue to get better. The survival rate of a kidney transplant who gets their kidney from a living donor is a huge 98.7%; while the survival rate for patients who get their liver transplant from a living donor is 91.3%. (Scientific) There are no fees incurred for the donor for the surgery or care. While you will be responsible for travel expenses and other things like lost wages, lodging or annual physicals there are funds such as the National Living Donor Assistance Program that have been set up to offset or completely take care of these expenses. Knowing these facts can be helpful in the decision making process. (Transplant)
The best tool you can use in your decision making is knowledge. It is a deeply personal decision that you need to make yourself without outside influences. There are several organs that you decide to donate and several types of living donation that we talked about. Be sure to consult the transplant team in your area to find out the individual requirements and to find out if you are able to become a living donor. Giving the gift of life to someone whether they are someone you are related to or have never met is the most amazing gift you can give. Use these facts to help yourself make your decision, good luck.
“What does it mean to pass life on? It means that you have the potential to help save and enhance the lives of others- those who suffer from chronic illness, from debilitating disease, from the effects of traumatic events.” (Life) Can you imagine what it would be like to be able to save someone’s life just by making the conscious decision to do so? What it feels like to have such power in your hands that you could save someone’s mother or father, sister or brother, son or daughter just by saying “I will do this.” The secret here is that you CAN save someone’s life just by saying “I will do this.” It isn’t a decision to take lightly or one you can make over night but it is one worth considering. The gift of life I am talking about is living organ donation. Most people are not even aware that living organ donation is a possibility and even less is commonly known about the process, risks, benefits and the costs associated with this most selfless gift. Organ donation is important even if you only choose to donate after death, but with medical science progressing every day we now have the unique ability to become an everyday superhero. Here are facts and a basic guide to becoming a living organ donor.
When most people think of donating organs the first thing that comes to mind is death. While it is true that most organ transplants take place after someone has been legally declared brain dead, it is possible to be a living organ donor. Most people who make the decision to become a living donor donate their organs to a family member or close friend, but there are also many cases of selfless strangers donating to people that they have never even met. Roughly 6,000 transplant surgeries a year happen because of living donors! (Transplant) While this number seems great it is sadly still true that about 18 people die each day because of a lack of available organs. (Donate) Currently there are about 116,949 people on the transplant waiting list (United) and it roughly every 11 minutes another person is added to this list. (National) The decision to become a living organ donor is not one to take lightly you should be sure to consider all of your options before making this very personal decision.
The most common organ donated by a living donor is a kidney. Due to this fact, most people tend to be under the impression that the only organ a living donor can donate is a kidney, however this is not true. A living donor has the ability to donate a kidney, a portion of their liver, one of their two lungs, part of the pancreas or part of their intestines. It is important for all people considering live organ donation to understand why they can safely donate these organs. A living donor can donate one of their two kidneys because the remaining kidney will function well enough on its own to still remove waste from the body. It is possible to donate a portion or lobe of their liver because a healthy liver has the unique ability to regenerate itself or re-grow its cells almost back to its original size in a short amount of time! Donating a lung, part of one’s pancreas or a portion of their intestines is somewhat different from the liver. These organs are different because they do not have the ability to regenerate themselves; however, the donated portion and the portion remaining with the living donor are fully functional without the missing section. (US) Now that you understand what organs can be donated you should research the criteria a living donor must meet.
Many people are able to be living organ donors, with this being said of course there are ideal circumstances and ultimately the decision is made at the discretion of the transplant center you are working with. The criteria to be a living donor has some wiggle room and is not entirely concrete so don’t let these general guidelines discourage you; every case is different. In general it is recommended that living donors range in age from 18 to 60 years of age. Donors should be in good overall health and emotionally stable. You must be a compatible donor for your recipient. Donors should not have or have had diabetes, cancer, a history of high blood pressure, heart disease or kidney disease. (Donate) There will be many physicals and routine exams and tests preformed to ensure that a potential donor’s physical and emotional health are adequate. Your health and safety as a donor are important, if there is any indication that the transplant will have a negative effect on your life the doctors will not approve the surgery.
There are several types of living donation that you can consider; here we will examine the four most common types of living donation. The most common living donation occurs between blood relatives and is known as related donation; it is when a living donor gives an organ to someone who is closely related to them by blood such as a brother, sister, parent etcetera. Another type of living donation is known as Non-Related donation and occurs between people who are emotionally close to one another though not actually related by blood such as a spouse, in-law or best friend and so on. Non- Directed donation happens when the donor and recipient do not know one another at all and have never met; this is donation is made by a completely selfless donor. A more complicated type of living donation occurs between two kidney donor/recipient pairs that are already matched but not compatible with one another. In this case the recipients exchange donors so that they are then compatible and can receive their new kidneys. (Donate)
There are several tests that are involved with becoming a living donor. Transplant teams want to ensure that they are careful and thorough so that the best outcome can be expected. The first step is to make sure that the donor and recipient have a compatible blood type. Your blood types don’t have to be an exact match but there are certain blood types that are compatible and others that are not. The following chart will illustrate the blood type compatibility:
Blood Type Compatibility Chart
Recipient's Blood Type Donor's Blood Type
O O
A A or O
B B or O
AB A,B, AB or O
(Transplant) Courtesy of transplantliving.org
If the donor and recipient are deemed compatible then the next step is the extensive medical work up which includes nine main components. The first test is tissue typing. Tissue typing is when the donors blood is taken and matched using 6 codes on donor and recipients cells. This is a standard test but very rarely used as a determining factor for living donation. The second test is called Crossmatching. Crossmatching is another blood test that can tell is the recipient will adversely react to the donor organ. The test can find out if antibodies in the recipient will react adversely with the donors, if this happens the recipient will immediately reject the organ and therefore the transplant team would not want to proceed. This test is most commonly used for kidney and pancreas transplants. The third test is the Antibody screen. The antibody screen can basically be described as the same as crossmatching as it is used as a way to determine donor/ recipient compatibility based on antibodies but it is used in all transplants. In the case of a kidney transplant a urine test is preformed to make sure that the donor’s kidneys function well enough. A chest x-ray and electrocardiogram is used to make sure that the donor does not have an unknown lung or heart disease. An arteriogram is a set of tests that allows the organ that is going to be transplanted to be viewed by injecting liquid that can be seen on an x-ray into the blood vessels. A psychiatric and psychological evaluation will also be performed to make sure that the donor is making this conscious decision with a sound and healthy mind. For potential female donors a complete gynecological exam is also necessary along with a mammogram for women over the age of 32. Finally there is a final blood test usually conducted within two days of the transplant; it is another crossmatch to ensure again that the two people are entirely compatible. (Transplant)
Perhaps the biggest thing that people consider before deciding whether or not to become a living donor is the risks associated with the surgery and after care. No matter what your individual transplant team will be able to give you the best answer for this question because they know every aspect of your medical history and the circumstances surrounding the transplant so be sure to consult them for a better idea. There is a general list of risks that although rare can happen. The risks can include pain, infection, incisional hernia, pneumonia, blood clots, hemorrhaging, the potential need for a blood transfusion or even death. There are also some psychological concerns as well. Psychological concerns include anxiety, depression, distress if the organ is rejected or guilt should the recipient die. These risks are serious and real, but also rare. Your transplant team can help you better understand these risks and you should consider them when you make your decision as well.
Recovering after donating an organ sounds scary and confusing! The truth is donors only stay in the hospital an average of four to seven days after the surgery. As a general guideline it is said that donors can resume their normal, everyday activities roughly one month after surgery and even return to work at approximately six weeks post-op. After the operation you will have follow up care with the transplant team to ensure that you are doing well both physically and emotionally following the transplant and shortly thereafter you will be able to return to your primary care physician. (Transplant) It is important to know that being a living donor does not change or decrease your life expectancy! Typically living donors continue to live normal, healthy lives just as they did before the transplant. (Donate) Women who wish to become living donors should know that there are no studies to show that pregnancy after donation is abnormal at all. However, in order to give your body proper time to heal it is suggested that you wait about six months to become pregnant after your surgery. As far as future insurance coverage goes, having been a living donor is not restricted by most insurance companies. (Transplant)
“Somewhere on that list is… A man who hopes he’ll be around to walk his daughter down the aisle. A woman who wants nothing more than to grow old with her husband. A child who can’t remember a time when trips to the hospital weren’t a normal part of life.” (National) Living donation is a way to increase the number of transplants per year to help bridge the gap in the organ shortage. In 1954 the first living organ donation was performed. The patients were 23 years old and were identical twins. Ronald Herrick donated his kidney to his twin brother Richard. Although Richard Herrick died eight years later it was unrelated to the transplant and until that point both men’s lives had been normal and healthy. (Transplant) Undeniably since 1954 the medical advances are astonishing and only continue to get better. The survival rates for transplant recipients only continue to get better. The survival rate of a kidney transplant who gets their kidney from a living donor is a huge 98.7%; while the survival rate for patients who get their liver transplant from a living donor is 91.3%. (Scientific) There are no fees incurred for the donor for the surgery or care. While you will be responsible for travel expenses and other things like lost wages, lodging or annual physicals there are funds such as the National Living Donor Assistance Program that have been set up to offset or completely take care of these expenses. Knowing these facts can be helpful in the decision making process. (Transplant)
The best tool you can use in your decision making is knowledge. It is a deeply personal decision that you need to make yourself without outside influences. There are several organs that you decide to donate and several types of living donation that we talked about. Be sure to consult the transplant team in your area to find out the individual requirements and to find out if you are able to become a living donor. Giving the gift of life to someone whether they are someone you are related to or have never met is the most amazing gift you can give. Use these facts to help yourself make your decision, good luck.
Thursday, July 22, 2010
Obama yo mama...
Obama intends to extend unemployment benefits, how do I feel about this? Well how can we really argue? I know enough people who have been tremendously effected by the high unemployment rates and most of them are good, honest Americans truly looking to replace their lost job but find themselves, and their families, out in the cold. The housing market has crashed and most people can't even figure out how to make ends meet when in the early 2000's most people were living frivolously. Now we are left with those same frivolous things and debt up to our ears from financing our dreams and nothing but hope to help put food on the table. I have to say I back Obama on this one. It might be nice if there was a way to ensure that those on unemployment are truly making the effort to find another job or better their lives. Get down with yo bad self Obama and help OUR people for once. How can we even have this argument when we constantly rush to foreign countries and give them aide but let our people suffer? Everyone needs to shut up and just throw the people a bone.
Is American Doing Enough to Reduce the Number of Deaths of Those on the Transplant Waiting List?
Every 90 minutes someone waiting for a transplant dies. (Satel) Many others die after waiting for an organ for so long that they are too sick to recover properly after the long awaited surgery. The organ allocation system that is currently used in the United States requires that people sign up to be an organ donor or have their family make the decision for them after death; this is known as the “opt-in” system. The sad reality is that our system is leaving a gap and causing unnecessary deaths. Other countries such as Spain and France have another system that has helped bridge the gap between those waiting for transplants and those receiving them; this is known and the “presumed consent” or “opt-out” system. The United States should adopt the system of “presumed consent” to help resolve this issue. (“Team”)
Unfortunately the flawed organ allocation system effects everyone equally; young and old, male and female and every race and gender. Many families have been forever changed and wounded because of the severe shortage of organs; the Turner family is just one of many examples. “Dear Hudson, Mommy and Daddy just wanted to let you know that we still think of you every day.” writes Brooke Turner in a letter to her son, “Hudsey please always remember us and as soon as it is our time we will come to be with you until then we will keep blowing kisses to the sky for our little Hudsey.” Brooke is a mother who knows all too well the pain of saying goodbye to a loved one who died after an extended wait for a heart transplant left him too ill to recover after finally receiving an organ. Her son, Hudson, was just 5 months old when he passed away. (Turner) Every day around 18 people die due to the organ shortage. One donor can potentially save up to eight lives and enhance fifty other lives! By changing the organ allocation system to mimic the system currently in place in other countries such as Spain we can potentially save the vast majority of those dying while waiting for transplants.
Presumed consent is exactly what it sounds like: unless stated otherwise you are automatically an organ donor. This system operates the opposite way that the system we use in the United States does. Instead of having to sign up to be a donor everyone is automatically an organ donor unless they opt out and make their wishes to not be a donor known. Presumed consent eliminates the need to remember to sign up online to be a donor or fill out the back of your license. (“Team”) According to a survey recently conducted only 63% surveyed had actually remembered to sign up to be an organ donor even though 100% of the people surveyed felt that people should donate their organs. Furthermore 74.1% of the people surveyed said that they would support this system. Only two people stated that they wouldn’t agree with using presumed consent and five people chose option C which was other. It is also important to know that 4 of the 5 people who did select ‘other’ as an option acknowledged that they would agree with the system but due to health problems they wouldn’t be able to donate either way. (Gumpher)
Spain, Belgium and France are three successful examples of countries that use presumed consent. Not surprisingly, these three countries have higher rates of organ and tissue donation than the United States as a result of the presumed consent system. As of June 18, 2010 the OPTN (Organ Procurement and Transplantation Network) has 116,976 people waiting for a transplant; 76,667 of the people listed on the waiting list have been waiting for more than a year! Spain has the highest rate of transplantation in the world! Currently, Spain has been able to obtain 33.6 organs for every million people in their population! In the 1990’s Australia implemented a system similar to Spain’s Opt-Out policy and saw a huge rise in organ donation from 8.6 organs per million people to a huge 19.6 organs per million people. There has been undeniable success with this system. (Ferriman)
There are many myths surrounding organ donation. Many people believe that if the doctors know they are a donor that they will not work as hard to save them. While this is a common myth, it is not true. The doctors that would be working to save your life are not affiliated at all with the transplant team that would be responsible for taking viable organs. Another very common argument is that even if you are brain dead you could potentially wake up. It is impossible to wake up after brain death. Brain death is commonly confused with comas, which a patient can recover and wake up from, but no one who has ever been pronounced brain dead using the required criteria to be considered a donor has ever woken up. Also the transplant team is not even consulted until a person has already been pronounced brain dead; in other words after all other live saving methods have been exhausted. Doctors will not take organs that you have not consented to give, your family will not be responsible for any costs associated with the transplant, it does not affect the possibility of having an open casket funeral and no one with viable organs is too old or young to donate. (“Team”)
The potential to save innocent lives rests in our hands. By changing the current allocation system from the opt-in policy to the opt-out policy we can raise the rate of donation to a percent that could conceivably bridge the gap between the number of people on the waiting list and the number of available organs entirely. This is the simplest solution that generates the least amount of opposition since everyone still gets to make their own choice in the matter. With all of the supportive information given there is sufficient proof that adopting this policy will save the lives of thousands every year and as such we should adopt this program in the United States.
Wednesday, June 23, 2010
A little help please?
I am conducting a simple 4 question survey that is relevant to my next paper for this English class. It is completely anonymous and I would appreciate it if you guys could take the time out to respond to the questions. Thanks!
http://FreeOnlineSurveys.com/rendersurvey.asp?sid=2s1yja4a1ap1jv3776594
Just copy and paste the web address into your address bar and answer! Pass this around to anyone you know who is willing to take it please, the more people take it the more credible the results will be. Thanks again!
Emily
http://FreeOnlineSurveys.com/rendersurvey.asp?sid=2s1yja4a1ap1jv3776594
Just copy and paste the web address into your address bar and answer! Pass this around to anyone you know who is willing to take it please, the more people take it the more credible the results will be. Thanks again!
Emily
Tuesday, June 22, 2010
Parenting a Child with Cerebral Palsy. In Honor of my miracle baby Payden.
Genre: Informative
Purpose: To provide parents who are new to the disorder gain a better grasp on some of the conflicting information.
Audience: Parents and families raising a child or children with Cerebral Palsy.
Parenting a Child with Cerebral Palsy. In honor of my miracle baby Payden <3
Planning to have a baby is a joyous time in life for couples that is filled with adventure, excitement and dreams that of what lies ahead. From the time you learn that you are pregnant the center of your universe seems to shift over to focus on your child-to-be. You dream about what your child will look like, what their personality will be like. You make plans for your baby’s life; both immediate plans like decorating the nursery and distant life plans such as college and marriage. Now imagine having those dreams come crashing down around you after learning that your child will be taking a completely different life path, a life path filled with fear and uncertainty. This unintended path is better known as Cerebral Palsy. There are several ways for a child to develop Cerebral Palsy and while life expectancy and quality of life vary greatly from child to child one thing is for sure; it’s a long scary road.
While there are many things that can cause Cerebral Palsy the simplest explanation is that Cerebral Palsy results from damage to the brain. Most typically Cerebral Palsy appears to develop while the baby is still in the womb; however it can also occur within the first few years of life as a result of a severe infection or brain injury. It can be difficult to pinpoint the exact cause of the brain damage but some of the more common known causes are as follows: improper development of the brain (also known as a congenital abnormality), prolonged high bilirubin (jaundice, yellowing of the skin and eye whites caused by a decrease in function of the liver), oxygen deprivation during the birthing process and strokes (in and out of the womb). The mother can also contract certain infectious diseases during her pregnancy which can be linked to Cerebral Palsy these include: Toxoplasmosis, Syphilis, Chickenpox, Cytomegalovirus and Rubella. Finally there are two illnesses that a child can contract that have been linked to Cerebral Palsy and they are Meningitis and Viral Encephalitis. (“Cerebral Palsy” Mayo) No matter what caused your child’s Cerebral Palsy it is a life changing disability. Once this devastating diagnosis has been made it is of the utmost importance to plan for the appropriate care of your disabled child. A way to better understand this unique disability is to identify what type of Cerebral Palsy your child has.
Cerebral Palsy can be described as an umbrella diagnosis; this means that it is a disorder that refers to a wide variety of developmental disorders involved with the impairment of movement and muscle control and can also cause mental impairment. There are three main types of Cerebral Palsy: Ataxic, Spastic and Athetoid Cerebral Palsy. It is not uncommon for some children with Cerebral Palsy to have a combination of symptoms from one or more of these three common types; when this is true it is known as mixed Cerebral Palsy. It is also possible for your child to fit into the ‘Unknown’ category of Cerebral Palsy; this is when your child suffers from one of the lesser known forms of Cerebral Palsy. While each of these forms of Cerebral Palsy are unique the thing they have in common is that they all effect muscle tone and coordination. (“Cerebral Palsy Types”)
Ataxic Cerebral Palsy presents with hypotonia (low muscle tone) and poor coordination. Children with this type of Cerebral Palsy often times have difficulty with coordinating their muscles for any type of movement from holding their head, rolling over to walking. “Their muscles can be similar to a wet noodle in the way that they are so flexible coupled with a lack of control.” (Farquar). Spastic Cerebral Palsy presents with slow, uncontrollable spastic movements. This can affect the legs, arms, hands, feet and even the face. These movements are unintentional and completely random which can make talking, eating and other simple, everyday tasks difficult for the child to execute. Muscle tone in children with Spastic Cerebral Palsy can vary from hypotonia to hypertonia (an increased tension in the muscles, extreme tightness) and can also change frequently. This specific type of Cerebral Palsy is the most frequently seen form; it occurs either alone or in Mixed Cerebral Palsy in almost eighty percent of cases. Spastic Cerebral Palsy is quite nearly the opposite of Ataxic Cerebral Palsy in the respect that it presents with hypertonia. Children with Spastic Cerebral Palsy often have tight, stiff muscles and are limited in their movements because of their inability to move certain muscle groups. Some children with Spastic Cerebral Palsy also suffer from hemiparetic tremors; this means that at times they experience uncontrollable shaking (tremors) on one side of their body. Children affected with this type of Cerebral Palsy often have trouble shifting positions and using their hands to grasp and hold objects. It can be more outwardly identifiable because children with Spastic Cerebral Palsy often have stiff hand muscles which leaves their hands in a ‘C’ shape almost unceasingly. No matter what type of Cerebral Palsy your child has; be it a single type, a mixed type, or a rare form of Cerebral Palsy it can be a debilitating condition. It is important to seek the appropriate therapies to improve the quality of your child’s life. (“Cerebral Palsy Types”)
There is no one size fits all guide to improving the life of a child with Cerebral Palsy. Every parent finds the unique rhythm of therapies, specialists and early intervention that best benefits their child at any given time. It is important to know that your needs and your child’s needs will change frequently so you should be open to change and flexibility in your therapy routine. Therapies of different types will become part of your routine. Physical therapy combines exercises and work outs tailored to fit your child’s special needs. Physical therapists most often focus on gross motor skills such as sitting, crawling and walking to name a few. Occupational therapists work with devices and tools to help improve your child’s fine motor skills such as holding a pencil, hand- eye coordination and using utensils. Speech therapists help your child with communication. They can work with your child to help them speak more clearly or even teach them sign language or other forms of alternate communication such as communicating with picture boards. If your child also has problems with eating your Occupational therapist or Speech therapist can address those problems; this includes everything from learning to swallow to oral aversions. It depends on where you go to receive your therapy services on which therapist will attend to problems with eating. (“Cerebral Palsy” Mayo) Having a Physical, Medicine and Rehabilitation doctor can also be extremely helpful in coordinating your child’s care and making sure they get the adaptive equipment necessary to make their lives easier. (Thorogood).
Adaptive equipment is equipment that is altered to make it useful for children with special needs in almost the same way that is is useful for other children. Adaptive equipment can help a child feel “normal” and more independent; it can also help you in your everyday life. Equipment that is traditionally used for babies and toddlers may not be sufficient or useful to a child who has Cerebral Palsy. Be it the need to have the muscles positioned in a certain way or because of safety issues your child at one point or another will likely need some sort of adaptive equipment. Fortunately, in recent years there have been many wonderful strides in this area of special needs. You can find adaptive equipment to replace everything from car seats to bath tubs to high chairs to suit your child’s needs. This is where having a Physical, Medicine and Rehabilitation doctor can help make your journey with Cerebral Palsy much more bearable. You should start by going to your Physical, Medicine and Rehabilitation doctor with your concerns and your child’s unique needs and ask them to coordinate with your child’s therapists to select the most effective and efficient adaptive equipment based on need and ability. Other equipment can also help your child stay comfortable and happy as well as help train their muscles such as orthotics (or braces) on your child’s legs. These are designed to help your child achieve a variety of things from aligning their knees, ankle and hips all the way to preventing them from losing the range of motion in their foot that is caused by walking on their tip toes. It is important that you have this talk with your doctor early because this equipment can be costly and it often takes insurance companies several months to approve and pay for special equipment, if they do so at all. This is just another small step in improving your child’s quality of life. (Coping)
As you can see every family and child’s journey with Cerebral Palsy begins and leads to different places. Everyone has a unique journey but as caregivers we have the same ultimate goal: greater quality of life and to receive the best possible care. From the first step of getting the diagnosis to receiving the wide variety of therapies it is important to keep this goal in mind and to support the efforts of the doctors who are fighting to further our knowledge of this disorder. Good luck with your individual journey.
DEATH: THE NUMBER ONE KILLER IN THE USA. TELL YOUR FRIENDS.
"Your life is an occasion, rise to it." This quote comes from one of my favorite movies of all time: Mr. Magorium's Wonder Emporium!! I feel like more people should embrace the ideals of this movie and apply them to their lives. After all of the health problems my son, Payden, has had I finally feel like I can understand this quote. But there are great insightful quotes throughout this entire movie that I just love. The first impression that I got from this movie was that it was about a magical toy store and therefore meant for children but upon watching it I realized that this is about so much more than a magical world that every child (and adult) would dream about! It is a must see on my list. I could quote this movie all day long... it inspired me to have the tough conversation about death and dying in general with my 4 year old son. I'm a sucker for great life quotes I suppose. Since this is a free write blog I decided to write on this movie since I just watched it again and would recommend it to parents with young children because it is a beautiful way to explain death to our children. In the movie the main female character is talking to the owner of the store about dying and I thought it was interesting because I don't want my kids to feel like someone who dies is truly gone or rather truly unreachable... "Molly Mahoney: Are you dying?
Mr. Edward Magorium: Light bulbs die, my sweet. I will depart."
Think about it... Oh and laugh about the quote that I posted for my title... makes me laugh every time.
Mr. Edward Magorium: Light bulbs die, my sweet. I will depart."
Think about it... Oh and laugh about the quote that I posted for my title... makes me laugh every time.
Social Issues: Societys's dirty laundry hung out to dry...
"Smoking kills. If you're killed, you've lost a very important part of your life." This utterly ridiculous quote is from Brooke Shields and it made me giggle :-D
In class we recently debated the Michigan Smoking Ban... I am totally for this! I'm tired of smokers whining about how we are infringing on their rights... when I come to the bar I don't pollute your air so how am I infringing on your rights? How about when I go to a restaurant to eat... am I making you cough or causing your child to have an asthma attack? Don't go complaining that the restaurant should install better air vents or filtration systems or that the smoking section should be further away from the non-smoking section because guess what when you're not a smoker you can smell it either way. I'm sure this will upset some people, but sorry about your bad luck because I am entitled to my well backed opinion. Look up the issues of secondhand smoking there is NO safe level of secondhand smoke and the complications are endless. Why should I have to stay home just to avoid it? I am not causing you any harm so why am I the one losing out??????? What about the kids who have no choice in the matter??? Where have our ethics and feelings of moral obligations gone???? Smoke at home or in your car I don't wanna smell you in or near public buildings. Oh and here are some facts to back my big mouth up... see if you can look into it between cancer stick breaks
http://www.epa.gov/smokefree/healtheffects.html
In class we recently debated the Michigan Smoking Ban... I am totally for this! I'm tired of smokers whining about how we are infringing on their rights... when I come to the bar I don't pollute your air so how am I infringing on your rights? How about when I go to a restaurant to eat... am I making you cough or causing your child to have an asthma attack? Don't go complaining that the restaurant should install better air vents or filtration systems or that the smoking section should be further away from the non-smoking section because guess what when you're not a smoker you can smell it either way. I'm sure this will upset some people, but sorry about your bad luck because I am entitled to my well backed opinion. Look up the issues of secondhand smoking there is NO safe level of secondhand smoke and the complications are endless. Why should I have to stay home just to avoid it? I am not causing you any harm so why am I the one losing out??????? What about the kids who have no choice in the matter??? Where have our ethics and feelings of moral obligations gone???? Smoke at home or in your car I don't wanna smell you in or near public buildings. Oh and here are some facts to back my big mouth up... see if you can look into it between cancer stick breaks
http://www.epa.gov/smokefree/healtheffects.html
Tuesday, June 1, 2010
What's with all of this BP oil spill nonsense??
The question at hand is what do I think about this? I think this is absurd. BP needs to take responsibility for their systematic failures and flaws in not just their equipment but also their company! This should not still be going on, imagine how this will ultimately effect our ecosystem! The potential implications are frightening. I personally feel that boycotting BP is a good idea. Our gas prices are going to go up regardless so why waste the extra dollar a gallon at BP? These executives need to get out of their comfy offices and help in the clean up efforts as they insufficiently prepared for such a disaster.
Tuesday, May 25, 2010
Court Rules Homeless Sex Offenders Don't Have to Register... Wait? Seriously?
A Michigan Court of Appeals rules that homeless sex offenders do not have to register with the state. After this ruling was made the percent of sex offenders rose to a huge 62%... hmm, coincidence? I think not. Now I understand that if you are homeless you cannot report an address however, there really isn't any reason why these dangerous criminals cannot report to the local police station verifying that they are staying in town at local shelters or even in their car in a park. Let's just say that I don't really care how they do it all I really care is that they are somewhat monitored. Not to mention that a lot of these people are likely claiming they are homeless so they can escape police monitoring. I don't feel bad for the critics that say we are infringing on their rights by forcing them to report. Guess what? They infringed on another person's rights when they sexually assaulted them. I guess what I am getting at is they need to suck it up. Then again I just don't have sympathy for people who feel like they deserve rights that they denied to others. I'm a strong supporter of an eye for an eye.
Tuesday, May 18, 2010
I am from...
I am from a family with nine kids who always play fight, chaotic family get togethers and Mom kissing boo-boos and making things right.
I am from swimming pools and water slides, swing sets and wagon rides.
I am from a house with too many cars in the drive, Timbertown, late night ice cream runs and friends that make you feel alive.
I am from a family who loves Grandma's bread homemade, the yummy dish and a yearly birthday wish.
I am from the neighborhood with the crazy lawnmower man, bumpy streets and parks where as a child I played and made secret plans.
I am from a family of professional chefs and pastry chefs where every family meal is always the best!
I am from a family of "I love you the mostest every time!" and just being together makes everything fine.
I am from a home where my three children live, love and breathe; watch movies, dream and play make believe.
I am from a family who keeps memories and love close in their hearts, even when we go on new adventures and need a fresh start.
I am from swimming pools and water slides, swing sets and wagon rides.
I am from a house with too many cars in the drive, Timbertown, late night ice cream runs and friends that make you feel alive.
I am from a family who loves Grandma's bread homemade, the yummy dish and a yearly birthday wish.
I am from the neighborhood with the crazy lawnmower man, bumpy streets and parks where as a child I played and made secret plans.
I am from a family of professional chefs and pastry chefs where every family meal is always the best!
I am from a family of "I love you the mostest every time!" and just being together makes everything fine.
I am from a home where my three children live, love and breathe; watch movies, dream and play make believe.
I am from a family who keeps memories and love close in their hearts, even when we go on new adventures and need a fresh start.
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